Myra HollandOct 24 min readCaregiversTeamwork makes the dream work.Every appointment, every meeting, every moment, “are we doing enough?”. Often there’s no definitive answer and we’re left to figure it out.
mejoSep 102 min readmejo and Seattle Children’s Collaborate to Enhance Patient Care with Innovative Visual Narrative FeatureThe collaborative effort aims to empower families to easily create visually stunning showcases highlighting their loved ones' lives...
Brady CrandallSep 53 min readCaregiversFrom Isolated Dad to Connected Founder: How Community Shaped My Journey with HIE and Youth CrewsWhen our daughter was born with HIE (Hypoxic-Ischemic Encephalopathy), it felt like our worldhad shrunk to the size of a hospital room.
Courageous Parents NetworkSep 32 min readIn the Room: Let’s Make Caregiving a Bit EasierThis IN THE ROOM event featured 2 Rare Parents who Founded platforms.
Ryan SheedyJul 113 min readCaregiversOur Unexpected Hospital Visit While On VacationAs a parent of a child with a rare and complex medical condition, every outing can feel like a high-stakes operation...
Rare ParentingJul 104 min readCaregiversDoes Your Child Need Genetic Testing?While you might think your child is only at risk of a genetic disease if a certain condition runs in the family...
Myra HollandOct 24 min readTeamwork makes the dream work.Every appointment, every meeting, every moment, “are we doing enough?”. Often there’s no definitive answer and we’re left to figure it out.