Brady CrandallSep 53 min readCaregiversFrom Isolated Dad to Connected Founder: How Community Shaped My Journey with HIE and Youth CrewsWhen our daughter was born with HIE (Hypoxic-Ischemic Encephalopathy), it felt like our worldhad shrunk to the size of a hospital room.
mejoJun 235 min readCaregiversNavigating Rare Disease Challenges: How My Rett Ally Became a Mom's Secret AssetIn the wild ride of parenthood, nothing quite prepares you for the unexpected twists and turns that life throws your way.
mejoJun 114 min readmejo PartnersThe Journey of Shannon and Ellie: Embracing Life with Rett SyndromeLife often takes unexpected turns, leading us down paths we never imagined. For Shannon, the mother of an extraordinary eight-year-old...
International Rett Syndrome FoundationMay 164 min readmejo PartnersMy Rett Ally: Revolutionizing Care Management for Rett FamiliesOn a recent visit to the emergency room, it took just seconds for Samantha Brant to pull up a detailed, up-to-date medication list...
International Rett Syndrome FoundationJul 17, 20233 min readRare DiseaseInternational Rett Syndrome Foundation Unveils My Rett Ally to Support Caregivers of Individuals with Rett SyndromeMy Rett Ally, a web application powered by mejo, is specifically designed for Rett syndrome patients and families to simplify and enhance...
Brien GearinNov 43 min readSmiles for CeciWhile Rett has changed her life and our life as a family, it hasn’t changed the wonderful little girl Ceci is and always would be with or wi