Myra Holland
Teamwork makes the dream work.
Every appointment, every meeting, every moment, “are we doing enough?”. Often there’s no definitive answer and we’re left to figure it out.
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Ryan Sheedy
Jul 103 min read
Our Unexpected Hospital Visit While On Vacation
As a parent of a child with a rare and complex medical condition, every outing can feel like a high-stakes operation...
mejo
Jun 174 min read
Navigating the Complexities of Costello Syndrome
Today, we bring you the heartfelt testament of Amber, a devoted mother and caregiver, whose journey with her daughter Ryiah...
mejo
Jun 114 min read
The Journey of Shannon and Ellie: Embracing Life with Rett Syndrome
Life often takes unexpected turns, leading us down paths we never imagined. For Shannon, the mother of an extraordinary eight-year-old...
mejo
May 273 min read
Camp “Peace of Mind”: Laura and Sam, the Dynamic Duo
In the complexities of caregiving every day presents a unique set of challenges and triumphs.
mejo
May 152 min read
A Mother and Daughter's Rare Journey: Navigating the Diagnosis Sea
In the vast expanse of the medical world, a journey towards diagnosis can often feel like navigating the open seas without a compass...
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Our favorites
Industry podcasts worth checking out!
Brien Gearin
Nov 43 min read
Smiles for Ceci
While Rett has changed her life and our life as a family, it hasn’t changed the wonderful little girl Ceci is and always would be with or wi
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Real stories from real caregivers and experts.
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