moments of care

Myra Holland

Oct 2, 20244 min read

Teamwork makes the dream work.

Every appointment, every meeting, every moment, “are we doing enough?”. Often there’s no definitive answer and we’re left to figure it out.

Ryan Sheedy

Jul 10, 20243 min read

Our Unexpected Hospital Visit While On Vacation

As a parent of a child with a rare and complex medical condition, every outing can feel like a high-stakes operation...

mejo

Jun 17, 20244 min read

Navigating the Complexities of Costello Syndrome

Today, we bring you the heartfelt testament of Amber, a devoted mother and caregiver, whose journey with her daughter Ryiah...

mejo

Jun 11, 20244 min read

The Journey of Shannon and Ellie: Embracing Life with Rett Syndrome

Life often takes unexpected turns, leading us down paths we never imagined. For Shannon, the mother of an extraordinary eight-year-old...

mejo

May 27, 20243 min read

Camp “Peace of Mind”: Laura and Sam, the Dynamic Duo

In the complexities of caregiving every day presents a unique set of challenges and triumphs.

mejo

May 15, 20242 min read

A Mother and Daughter's Rare Journey: Navigating the Diagnosis Sea

In the vast expanse of the medical world, a journey towards diagnosis can often feel like navigating the open seas without a compass...

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Brien Gearin

Nov 4, 20243 min read

Smiles for Ceci

While Rett has changed her life and our life as a family, it hasn’t changed the wonderful little girl Ceci is and always would be with or wi

Real stories from real caregivers and experts.