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IgG4ward! Foundation Selects mejo to Develop IgG4-RD Care Coordination App
The IgG4ward! Foundation is delighted to partner with mejo to build IgG4ME!, a customized companion to help people with IgG4-RD rise to the
mejo
Dec 18, 20242 min read
Teamwork makes the dream work.
Every appointment, every meeting, every moment, “are we doing enough?”. Often there’s no definitive answer and we’re left to figure it out.
Myra Holland
Oct 2, 20244 min read
From Isolated Dad to Connected Founder: How Community Shaped My Journey with HIE and Youth Crews
When our daughter was born with HIE (Hypoxic-Ischemic Encephalopathy), it felt like our worldhad shrunk to the size of a hospital room.
Brady Crandall
Sep 5, 20243 min read
Our Unexpected Hospital Visit While On Vacation
As a parent of a child with a rare and complex medical condition, every outing can feel like a high-stakes operation...
Ryan Sheedy
Jul 11, 20243 min read
Does Your Child Need Genetic Testing?
While you might think your child is only at risk of a genetic disease if a certain condition runs in the family...
Rare Parenting
Jul 10, 20244 min read
Tethered Spinal Cord Syndrome and Surgery: What Parents Need to Know
A tethered spinal cord (or tethered spinal cord syndrome) is a developmental abnormality that occurs in about 2 of every 1,000 births...
Rare Parenting
Jun 25, 20243 min read
Navigating Rare Disease Challenges: How My Rett Ally Became a Mom's Secret Asset
In the wild ride of parenthood, nothing quite prepares you for the unexpected
twists and turns that life throws your way.
mejo
Jun 24, 20245 min read
Navigating the Complexities of Costello Syndrome
Today, we bring you the heartfelt testament of Amber, a devoted mother and caregiver, whose journey with her daughter Ryiah...
mejo
Jun 17, 20244 min read
The Journey of Shannon and Ellie: Embracing Life with Rett Syndrome
Life often takes unexpected turns, leading us down paths we never imagined. For Shannon, the mother of an extraordinary eight-year-old...
mejo
Jun 11, 20244 min read
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Our favorites
Industry podcasts worth checking out!
Hope With Lo: A Rare Journey of Courage, Care and Community
Lovingly known as “Lo,” Lola was diagnosed just before her first birthday. That moment changed everything for her family. Blind, deaf (she wears cochlear implants), and unable to walk or talk, Lola also faces serious complications with her liver, kidneys, bones....
mejo
4 days ago4 min read
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Real stories from real patients, caregivers and experts.
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