Caregivers | mejo 2/2

Bret Koncak

May 144 min read

Is 'Patient-Centered' enough for medically complex patients & families participating in clinical trials or new treatments?

When we ask patients or caregivers to do more, do they see a substantial return on their time investment?

Rare Parenting

Apr 273 min read

What Parents Need to Know About SUDEP – Sudden Unexpected Death in Epilepsy

Epilepsy affects up to 470,000 American children and about 11 million children ages 15 and under worldwide.

Rare Parenting

Mar 184 min read

What is a Child Life Specialist in the Hospital?

Parents of children with medical conditions or complex needs are usually familiar with an array of hospital staff, including doctors...

Podcasts

Mar 12 min read

Child Life on Call - Episode 189 | Ryan’s Story- A son with Costello Syndrome

Meet Ryan Sheedy, an incredible father who, much to his own surprise, found himself immersed in the delightful chaos of caring for twin...

International Rett Syndrome Foundation

Jul 17, 20233 min read

International Rett Syndrome Foundation Unveils My Rett Ally to Support Caregivers of Individuals with Rett Syndrome

My Rett Ally, a web application powered by mejo, is specifically designed for Rett syndrome patients and families to simplify and enhance...

Our favorites

Industry podcasts worth checking out!

Brien Gearin

Nov 43 min read

Smiles for Ceci

While Rett has changed her life and our life as a family, it hasn’t changed the wonderful little girl Ceci is and always would be with or wi

Real stories from real caregivers and experts.