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Tethered Spinal Cord Syndrome and Surgery: What Parents Need to Know

Rare Parenting

Jun 24, 20243 min read

Tethered Spinal Cord Syndrome and Surgery: What Parents Need to Know

A tethered spinal cord (or tethered spinal cord syndrome) is a developmental abnormality that occurs in about 2 of every 1,000 births...

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mejo

1 day ago4 min read

Finding His Voice: Jonathan’s Journey with an Ultra-Rare Disease and How He Advocates for All

When you’re living with a condition that fewer than 20 people in the world share, it can feel isolating—like carrying a secret...

Finding His Voice: Jonathan’s Journey with an Ultra-Rare Disease and How He Advocates for All

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