rare disease

Our Unexpected Hospital Visit While On Vacation

As a parent of a child with a rare and complex medical condition, every outing can feel like a high-stakes operation...

Ryan Sheedy

Jul 11, 20243 min read

While you might think your child is only at risk of a genetic disease if a certain condition runs in the family...

Rare Parenting

Jul 10, 20244 min read

A tethered spinal cord (or tethered spinal cord syndrome) is a developmental abnormality that occurs in about 2 of every 1,000 births...

Rare Parenting

Jun 25, 20243 min read

Parents of children with rare diseases may spend years tracking down effective treatments as they manage symptoms...

Rare Parenting

Jan 19, 20245 min read

Industry podcasts worth checking out!

Written by: mejo At mejo, we have the privilege of connecting with extraordinary families navigating complex rare diseases. Today, we’re...

mejo

5 days ago4 min read

Real stories from real patients, caregivers and experts.