Ryan SheedyJul 103 min readCaregiversOur Unexpected Hospital Visit While On VacationAs a parent of a child with a rare and complex medical condition, every outing can feel like a high-stakes operation...
Brien GearinNov 43 min readSmiles for CeciWhile Rett has changed her life and our life as a family, it hasn’t changed the wonderful little girl Ceci is and always would be with or wi
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